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Web Surfing For Medical Information

by Dale C. Wurtenberger

 
      



The Internet is an amazing source for medical information, but be careful. There is as much misinformation on the WWW as accurate information. There are a few basic rules to follow when seeking facts about myasthenia gravis or any other medical condition.

KNOW YOUR SOURCE: Figure out whom is providing the information and their purpose in providing the information. Are they contributing the data as a public service, for publicity, or for profit? If the information praising the results of a certain drug is actually coming from the drug manufacturer, you will know that the source is legitimate, but possibly biased. Sites run by the government or nonprofit organizations are usually more objective.

Colleges and Universities can also be great sources of information. If an article is posted at a site owned by a college or university, the URL address will usually include 'edu' and a government site will include 'gov'. This is an easy way to be sure the article is actually being supplied by the government or a university.

There is a site that may help verifying medical information. Quackwatch (www.quackwatch.com) is a resource for monitoring medical advice, although they tend to be extremely judgmental of alternative medicine.

CHECK THE DATE: Is the information new, or new to you? Older information may be accurate, or it may be out of date. Medical advances are being made constantly.

ASK YOUR DOCTOR: If you come across information on treatment or disease, verify the source, and check the date before printing a copy for your doctor. Most doctors are treating patients with a myriad of diseases. They may or may not have read the latest findings on myasthenia gravis. They should be able to give an opinion and an explanation of the information as it pertains to you, the patient.

MAIL LISTS can supply a wealth of information for myasthenia gravis and other diseases. It is imperative that you keep a few things in mind when writing to and reading information at a LISTSERV. Most of the people participating are honest, concerned, patients, wishing to share information. Most are not medical professionals. Myasthenia gravis affects everyone differently. What works for one patient may not work for another patient. If a fellow myasthenic suggests you switch laundry detergents, following this suggestion does no harm. But, if they are suggesting a product that will boost your immune system, do not try it without your doctor's knowledge. MGmail is a wonderful place to meet fellow myasthenics, and the support of people who understand is extremely important. The information being shared can also be overwhelming. Know your source and use common sense.