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The Internet is an amazing source for medical information, but be careful.
There is as much misinformation on the WWW as accurate information. There
are a few basic rules to follow when seeking facts about myasthenia gravis
or any other medical condition.
KNOW YOUR SOURCE: Figure out whom is providing the information
and their purpose in providing the information. Are they contributing
the data as a public service, for publicity, or for profit? If the information
praising the results of a certain drug is actually coming from the drug
manufacturer, you will know that the source is legitimate, but possibly
biased. Sites run by the government or nonprofit organizations are usually
more objective.
Colleges and Universities can also be great sources of information.
If an article is posted at a site owned by a college or university, the
URL address will usually include 'edu' and a government site will
include 'gov'. This is an easy way to be sure the article is actually
being supplied by the government or a university.
There is a site that may help verifying medical information. Quackwatch
(www.quackwatch.com)
is a resource for monitoring medical advice, although they tend to be
extremely judgmental of alternative medicine.
CHECK THE DATE: Is the information new, or new to you? Older information
may be accurate, or it may be out of date. Medical advances are being
made constantly.
ASK YOUR DOCTOR: If you come across information on treatment or
disease, verify the source, and check the date before printing a copy
for your doctor. Most doctors are treating patients with a myriad of diseases.
They may or may not have read the latest findings on myasthenia gravis.
They should be able to give an opinion and an explanation of the information
as it pertains to you, the patient.
MAIL LISTS can supply a wealth of information for myasthenia gravis
and other diseases. It is imperative that you keep a few things in mind
when writing to and reading information at a LISTSERV. Most of the people
participating are honest, concerned, patients, wishing to share information.
Most are not medical professionals. Myasthenia gravis affects everyone
differently. What works for one patient may not work for another patient.
If a fellow myasthenic suggests you switch laundry detergents, following
this suggestion does no harm. But, if they are suggesting a product that
will boost your immune system, do not try it without your doctor's knowledge.
MGmail is a wonderful place to meet fellow myasthenics, and the support
of people who understand is extremely important. The information being
shared can also be overwhelming. Know your source and use common sense.
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