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Support and Myasthenia Gravis

by Allen Tacey

 
      


When I set out to write this article on support I had an idea and a strong feeling about this topic. But as the day came near for support to be put to "paper" I really was hit hard with the fact that I did the job right (in seeking support for myself). So I came up with this article. But, this is my experience to share, and I hope it will help even if it only helps one.

To often we go it alone proud to be "doing it my way" unaware of what it is really doing to us. My personality type is one such that I am very introverted and do much thinking on the inside. It pains me greatly if I have to depend on someone else to do what I can do just fine. My opinion is that I can take care of myself. But current events have made me very happy to put my faith in my fellow man!

The job I have done right is that I have asked for help in my personal life. MG has helped make that so. MG slowed me down gave me to much time to think! Support as I have defined it in my personal life has become a critical necessity. Too many eggs in one basket put my health in peril.

So I took those eggs and gave them a color. It made each egg distinct from the other. I then kept only the eggs I could handle on my own and delegated the rest to the proper "authority".

Spirituality: this does not mean religion. It means Spiritual. It means believing in the kindness, caring, helpfulness, and concern others have for me. This one is easy for me as I have some real enemies make the best friends I could ever have. They are not "yes" men but have been the best food for my soul (they don't pull no punches and sometimes it was literally!). The form of spirituality I practice is religion. I pass these eggs to my fellow man.

Myself: I have to be supportive. I have to give long before I get. I put out my best foot and sometimes it does get "stomped" on. But if I do not take the step I will never "arrive" at my destination. If I did not put my best foot forward it would buckle under me. These eggs are mine but I share them with the world.

Family: I wonder if they will ever really have any idea how important it is that they take care of these eggs. I look into the eyes of my family. Some say 'Have you hugged your Kids today?" I say have you looked in their eyes. I practice this one as often as possible. I need to see what is there. These eggs are special, treat them gentle, and if they cry you better make it right.

Community: I do not hang onto these eggs and I distribute them freely. I have to give to my community. I do volunteer "work", school, scouting, church, even bend over once in a while to pick up trash. These eggs come back to the basket when I am not looking (I think it is something that has to do with spirit!).

Work: to hand off these eggs takes effort. I have a Doctor, Neurologist, Pulmonary Doctor, Lawyer, and Counselor… This took much work but was worth it. Seeking their support, being dependent sometimes, being vulnerable at other times has lightened my basket. Having faith in the people who work to take care of our well being is difficult but not impossible.

Each of these different "eggs" makes up a balanced, self-actualized individual. We have something in common that we can share. We each have different colored eggs. Take time to ask yourself "what color can I share with my MG community?"