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The best advice
for any myasthenia patient is to simplify any and all household duties.
Myasthenics have many difficulties maintaining their homes. There are
outside chores as well as inside chores that can wear you out. The trick
to get all the things done, that you want to get accomplished might
just be changing how and when you do the chore or even the way that
you think about that chore. The trick is to save as much energy as possible
while doing the chore.
Look at your every day or every week household duties and think about
how you can make them less physical.
Pace yourself
and don't over do is the main objective.
Do not try doing all the cleaning in one or two days.
Try to schedule physical chores for only an hour or half an hour. Then
rest after that time. Then once you have rested if you feel you can
continue, go ahead for another half an hour. But if you do not feel
that you can continue DON'T. Instead take time to do mental chores like
paying bills, making a shopping list, or just call a friend.
Time yourself so that you do not exhaust yourself. The world will not
end if you only get half the bathroom cleaned. But if you exhaust yourself,
you might take a week to recuperate. Then you are behind even more from
getting things done.
Many times we keep going with a project only to find ourselves exhausted
when we finish. Set a timer to make yourself stop and rest. You will
get more accomplished in the long run.
Cleaning Hints
The bathroom is the most energy-depleting chore.
The chemical cleaners as well as the physical scrubbing can cause exhaustion.
If you can convince another family member or friend to do this chore,
do it.
Find a bathroom cleaner that does not cause your MG to exacerbate. We
are snowflakes, so one cleaner can bother one myasthenic and not another.
Try putting two Alka-Seltzer, cola, or Efferdent into the toilet bowl
before bed and let it work overnight. Flush in the morning and you have
a clean bowl. Rubbing alcohol and paper towels can be used to wipe the
toilet seat and sink. Baking soda is great for scrubbing. Spray bottles
with your favorite cleaner are much easier than a bucket full of water
and cleaner. Make sure you mark the bottles with a permanent marker
of what is inside.
Spray the tub and let it stand for a while. Do another chore like emptying
the wastebasket or washing the mirror. Scrubbing the shower while you
are in it is another option. Spray walls before you get in to take your
shower. Then wash down walls before you wash yourself.
Using throwaway
cloths helps. You don't have to worry about the extra laundry. It saves
energy for you.
Over the head cleaning is a major job for MGers. If you can devise a
tool with a handle for this job so that you aren't reaching too high
or far that will help. Vinegar and newspaper is excellent for cleaning
mirrors. Long handled cleaning tools help with cleaning lots of things.
Buy yourself several long handled brushes, such as toilet brushes. Mark
them with permanent marker, with the name of the job they are to do
so you don't get them mixed up. Don't scrub the tub with one you used
to scrub the toilet. Scrubbing the tub with a long handle brush is so
much easier than the reaching and stretching.
Kitchen Hints
If you are lucky and happen to be able to remodel your kitchen try to
get major appliances raised off the floor. Dishwashers can even be raised.
Wall ovens are easier than floor models. Washer and Dryers that stack
are easier to use then side by side models. The height of the counter
top can be lowered to wheelchair accessable. Not everyone can just remodel
his or her kitchen. But if you use your head you can change a few things
around to make it more energy conservative.
Putting a stool in the kitchen to use at the stove or sink may help.
Sit instead of stand while chopping, cooking or washing dishes.
Hand held little mixers may help instead of stirring food with a spoon.
Cook meals that don't require lots of stirring.
When you feel up to cooking make several meals or duplicate casseroles
to freeze. Make individual meals for days when you are not feeling well.
List all the ingredients you will need and ask a family member to get
everything out for you. Or make one trip to the refrigerator or cabinets.
Fewer steps.
Think first, make list second, then only take one trip. Rolling island
might be a good item to have in the kitchen with all you need in drawers
or cabinets.
Crock-pot or slow cookers are awesome when making big meals easier.
Food processors or small electric choppers might be a necessity in the
kitchen
Floors are another energy waster.
A lightweight mop with a disposable cloth helps a lot. Swiffer came
out with a new Swiffer that has a little vacuum attachment. This might
work well for some. Also they have the Wet Swiffer.
A trolley with wheels with cleaning supplies and attachments helps save
steps.
If you use a broom and dustpan add a stick to the dustpan so that there
isn't any bending.
Vacuums come in several different types but the self-propelled type
seems to be easier.
Laundry Tips
Putting the washer and dryer on the main floor helps the best. Going
up and down stairs is a main loss of energy.
Do your small items together. Wait until you have help to do the big
items such as sheets, rugs, blankets, etc. Asking for help is not a
sign of weakness. It is a sign of controlling your MG. Most friends
or family members will be happy to help if you ask. The person who helps
will feel a sense of accomplishment to be able to help. It will make
them feel better towards themselves. So you are not asking them to do
grunge work, you are asking them to help, which will make them feel
better.
So the main thing is to make things as easy as can be. Don't worry if
things don't get done. They will still be there tomorrow.
Thank you to everyone who contributed household tips during the online
support chat.
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